Tag: chronic illness
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Solidarity looks like…
For me, solidarity looks like enduring brambles, thistles, mosquitos, full body rashes from grasses, asthma attacks, bugs on everything all the time, and MCAS attacks to everything around me, even right before surgery, even through med changes, so I can learn to make medicine for community and comrades. We have to get comfortable with being…
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March 10th, 2024 – choices in risk mitigation with my illness
Yesterday, I left to vend at a kink event at 7am and got home at just after 9pm. Today, I was in a lot of pain and exhausted, but I chose to go roller skate for an hour anyways after an active day. Is this great for muscle atrophy? Nope. Did it bring me joy…
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In defense of “un-joyful” movement, and the demoralization of “personal choice” : (part 1)
When a doctor decides to talk about my weight, exercise, or diet, I know I have to remain aware that systemic, medicalized fatphobia will likely impact even the most self-aware doctor out there. This fact made me extremely aversive to trusting and following any advice I was given about my weight and adjacent factors. I…
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January 11th, 2023 – a very half-assed new years “project”
Look, I -was- gonna do something more creative and provocative and effortful, but life had other plans. More bad medical news, which I am still processing. Something something commentary on the physical emotional and financial cost of being chronically ill. Anyways here is me doggy paddling in about a years worth of prescriptions (probs like…
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December 20th, 2023 – health and training update
I got some pretty awful medical news yesterday after my latest nerve conduction study. Granted, I feel like I get some sort of unfortunate medical news monthly at this point, as is the nature of a progressive illness. But, this news felt a bit heavier. The radial nerves in both my arms are completely gone,…
Dani Shapira 