Tag: disability

• In defense of “un-joyful” movement, and the demoralization of “personal choice” : (part 1)

  

  When a doctor decides to talk about my weight, exercise, or diet, I know I have to remain aware that systemic, medicalized fatphobia will likely impact even the most self-aware doctor out there. This fact made me extremely aversive to trusting and following any advice I was given about my weight and adjacent factors. I…

  Dani

  February 2, 2024

  all topics, disability, mental health, chronic illness, & neurodiversity, eating disorders, ehlers danlos & the trifecta, harm reduction, main works, medical trauma

  chronic illness, disability, eating disorders, Ehlers Danlos, medical trauma, the trifecta

• January 11th, 2023 – a very half-assed new years “project”

  

  Look, I -was- gonna do something more creative and provocative and effortful, but life had other plans. More bad medical news, which I am still processing. Something something commentary on the physical emotional and financial cost of being chronically ill. Anyways here is me doggy paddling in about a years worth of prescriptions (probs like…

  Dani

  January 11, 2024

  all topics, ehlers danlos & the trifecta, medical trauma, medical updates

  chronic illness, disability, grief, medical grief processing, medical trauma, mini posts

• December 20th, 2023 – health and training update

  

  I got some pretty awful medical news yesterday after my latest nerve conduction study. Granted, I feel like I get some sort of unfortunate medical news monthly at this point, as is the nature of a progressive illness. But, this news felt a bit heavier. The radial nerves in both my arms are completely gone,…

  Dani

  December 20, 2023

  aisling, all topics, disability, mental health, chronic illness, & neurodiversity, ehlers danlos & the trifecta, medical grief, medical updates, service dogs

  aisling, chronic illness, disability, Ehlers Danlos, service dogs

• September 12th, 2023 – kitchen sink soup

  

  I make a lot of “kitchen sink” type dishes – I rarely follow an exact recipe and am always trying to experiment, especially if I have excess ingredients I need to use up quickly. This is a butternut squash soup I made! I roasted all my ingredients in a sheet pan for easy, hands-off work.…

  Dani

  September 12, 2023

  all topics, ARFID, eating disorders, ehlers danlos & the trifecta, kitchenwork

  ARFID, chronic illness, disability, Ehlers Danlos, food, kitchenwork, neurodiversity, paralytic ileus, the trifecta

• This morning, I thought about ending my life. Here is what I did about it:

  

  Trying to regulate my breathing made me feel like I was suffocating. “Mindfulness” felt like a mockery of my cultural and spiritual upbringing. Trying to be “present in my body” made me hyper aware of the pain I felt and the dysfunction within. I felt more shame and panic. Why wasn’t this working? Am I…

  Dani

  July 27, 2023

  all topics, animal care, disability, mental health, chronic illness, & neurodiversity, main works, medical trauma, mico, service dogs

  chronic illness, disability, medical trauma, mico, neurodiversity, service dogs, suicide, trauma